My review of it:
"I don't need to know any more sick people. I know me..."
I found this story quite unbearable, in a deeply poignant way. It should be read by everyone who is terminally ill. And we all are. I made the 'mistake' of reading it while listening to Mahler's Adagio from his 5th symphony. I shall never be the same...genuinely. The story is like a symphony in itself, alternating between the sick person's diary and a straightforward narration. That we are all part of each other - part of our history and future as self and unself. Even when those we loved we may not have loved enough because of inbuilt negative as well as positive symbiosis.
To think the ghost child within me may live on gives some sort of comfort. As does the story's ending. But deep down, we know that ghost is a snowdust bunny.
Literature like this can give you inspirational remissions along the way, but it is never forever. Old is only one letter short of cold. Esche one letter short of Escher.
"She coughed in a fit [...] until her eyes were full of stars."
My review of the whole book HERE